“Is My Condition Part Of What Makes Me… Me ?”
I personally see my own Primary Progressive Multiple Sclerosis battle as it is a “Symbiont”) – An organism in a symbiotic relationship. In cases in which a distinction is made between two interacting organisms, the symbiont is the smaller of the two and is always a beneficiary in the relationship, while the larger organism is the host and may or may not derive a benefit from the relationship.
And then there are times when I see my Primary Progressive Multiple Sclerosis as a parasite (Parasitism is a kind of symbiosis; a close and persistent long-term biological interaction between the parasite and its host. Parasitism is a relationship between species, where one organism, the parasite, lives on or in another organism, the host, causing it some harm, and is adapted structurally to this way of life).
Why can’t Ms be known as a parasite?… after all what Ms does to the body is that it eats away the insulating covers of nerve cells, the brain and the spinal cord causing quite a bit of damage and leaving scars along the way… disrupting the ability of parts of the nervous system; causing it to miscommunicate with the body, resulting in a range of signs and symptoms, including physical, mental, and sometimes psychiatric problems.
So What Is Multiple Sclerosis In A Nutshell?
Ms is a demyelinating disease which means that it is a disease of the nervous system in which the myelin sheath of neurons is damaged. This damage impairs the conduction of signals in the affected nerves. In turn, the reduction in conduction ability causes a deficiency in sensation, movement, cognition, or other functions depending on which nerves are involved.
However, a person chooses to take on the plentiful gifts of Ms &it’s many symptoms is purely up to the person who has been given the diagnosis of Multiple Sclerosis.
In my journey I choose to have a sense of humour (that I hold “My Story) responsible for), I keep busy with my web design/computer technician work, my many writing adventures & of course my blogging journey. I’m a busy Mum of 3 and a Wife to a very supportive Husband who all work hard to keep me grounded and on top of my Primary Progressive Multiple Sclerosis ailments.
I may sound chipper and it may seem that I have a can do, will do & have to do attitude about this whole life-altering story that has me in a not so bad of a way; let my words be heard but please don’t think that my journey has been and will be in the future an easy one, I have many many hard says and some land me in bed for days at s time… I work hard to keep myself on top of things & I work even harder to complete my own self appointed daily schedule… some days are more of an ass kicking than I let on… some days are full of self-talks and muttering moments that spur me to get a move on…
My Diagnosis of Ms has given me many hours of self-doubt… but I will never let myself get to the self-pity stage… I get angry for my family who has to endure the struggles that are not theirs (they also have to take on some of chore lists when “My Story” decides that he isn’t going to be a team player and work to get the house and its many chores done)… I am afraid of what tomorrow will bring… to be frank I am scared shitless of the unknown… I am in constant question time with my mind and souls governing body, it always seems to be in censorship that I am way to busy and mindfully active for someone who has PPMS but being busy in my many daily habits, Family and work life is where I get to be me… the me who has a diagnosis of Ms but is able to push through and just get shit done.
The best advice I could give to anyone struggling is this… get a notebook and write, write, write… Write about anything, writing is the best therapy that you could give to yourself.
Find a hobby, join a book club, take on a new adventure… but please whatever you do… “DON’T SIT STILL” sitting still and giving up will allow Ms and any other autoimmune disease to take over the cognitive functions of who it is that you are…
Like the saying goes “Strength In Numbers – When Referring To Bullying “ I believe that “A Can Do Attitude & Willful Strength Will See Those Brain Fog Days & Kick Ass Symptoms As Moments Of Resting Time For One’s Inner Courage.”
Building strength and determination that will help you to reach deep within… giving you the power to see you through your toughest days is what makes up the best defensive game for you and your Ms journey… will yourself every day to never give up… Ms doesn’t have to be the end of all your life’s ambitions… every person’s Ms is different so it is up to you to draw what will be the map of your life’s path.
“Ms Doesn’t Get To Wear The Warrior Costume & You Don’t Need One; Getting Up & Everyday … Pushing Hard To Be The Very Person You Can Be… Will Become The Grit & Grind That You Hold Onto Strength & Sheer Determination Will See Your Foggy Days Clear… Your Own Warrior Journey Will Be Your Best Run Race The Warrior In You Will Be Victorious When You Take Ms Head on Into Battle.”